Been an interesting day on BBC Radio.
First for egotistical reasons! My donor and I did an interview on 7th August (which happened to be our 1st tx anniversary) with the 'Health Check' programme on the BBC World Service. It was broadcast today (and again at 1.30am in a couple hours if any night owls are about). We were trying to get across how living donation isn't as scary a prospect as it might seem at first. Not sure how well we did - as usual there was loads we meant to say that didn't get said! You can listen/download/get podcast from the link above.
Then on Radio 4 this evening was the second in Ben Goldacre's (noted for his sceptical approach to most 'alternative' medicine in his excellent 'Bad Science' column in The Guardian) two part documentary on 'The Placebo Effect'. You can listen to both programmes for now on the Radio 4 website. These have been fascinating. They should be required listening in medical school! They back up something i seem to keep coming across right now about how the chances of recovery or improvement in medical conditions are hugely greater if you as a patient 'believe' you're going to be better (sometimes also called having a positive attitude).
Then Claudia Hammond (who interviewed us on the World Service) cropped up again discussing the famous 'Stanford Prison Experiment' in a new series called Mind Changers. Not really kidney-related but fascinating nevertheless!
The Brighton thing is an event happening there near the West Pier this Wednesday (27 August). It seems to be being organised by Sky TV as an organ donation awareness event, connected to a forthcoming programme they're doing. They're trying to get as many people as possible to come down between 11am - 6pm to join the donor register. They're keen to have people on hand who've had experience of being living donors and transplant recipients. I'll be there around 2pm. Do come along if you're in the area.
Monday, 25 August 2008
Saturday, 13 October 2007
From Slab to Studio in 22 days
Musician, Andy Williamson (39) inherited Polycystic Kidney Disease from his mother Avis, who received a transplant in Newcastle in 1993. In his early twenties, he was told that it might mean he would need dialysis or a transplant in later life, but not to worry about it until his 40s or 50s. So it was a bit of a shock in March 2006 when he 'crash landed' in Guy's Hospital with a GFR of 6, and he had to cancel a skiing holiday to start haemodialysis immediately. His friend, pianist Maff Potts dropped in a few weeks later during one of his dialysis sessions, and was shocked to see Andy, who he knew as one of life's daredevil characters (as anyone who saw them play together with the Honkin' Hep Cats will know), confined to a bed, hooked up to a dialysis machine. Over the months that followed, Maff got in touch with the Living Donor Coordinator at Guy's and found out what being a donor involved. As he told Eddie Mair on the PM programme on Radio 4 in July, "When I visited Andy and saw him on dialysis, it wasn't a difficult decision at all. I had two healthy kidneys but only needed one; my mate on the other hand had none and needed his life back. Offering him one of mine in that situation was a no-brainer."
Their transplant went ahead on Tuesday 7 August 2007. Three days later, the pair gave an impromptu concert in Guy's hospital (search www.youtube.com for 'maff andy' to see some of it). While Maff was at home recovering, he started writing a song. It needed some words, and Andy suggested he look at www.livelifethengivelife.co.uk for inspiration. In fact, that was enough - 'Live Life Then Give Life' was a perfect phrase for the groove Maff had written. Maff took the bull by the horns, booked the Cold Room Studio in Oxford, and called in some musician friends and family for a session on 29 August. He and Andy finished off the song, and the result is going to be released in November by Flat Five Records, with all royalties going to the charity 'Live Life Then Give Life'. The central message of the song is 'Sign Up to the Organ Donor Register'. In promoting it, the pair are also hoping to inspire more people to put themselves forward as living donors
To hear the song, and to become a 'friend' of 'Big Buzzard and the Organ Grinders', visit www.myspace.com/organgrinders.
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